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TBP Blog

The Realities of Early Detection

5/19/2020

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Early detection is one of the most important life-saving factors when wanting to prevent and fight breast cancer. If you can start on the journey early in your life, it might save and protect that life you've built and created. 

We've made it to May, friends! We are so thankful to be here with you today and thankful that there is a little more positive news in the world these days. There is still so much that we need to be cautious about, but as breast cancer warriors, that is not a new idea. We've shared some important facts on the realities of what it's like to live with breast cancer while raising children, personal stories of those fighting breast cancer, and how to better your quality of life while living through diagnosis and treatment. One topic that we are extremely passionate about is early detection. We spend a lot of time educating on the topic, spreading awareness on how to begin early detection, and helping those who could benefit from early detection. In this blog, we wanted to share some of the realities of why early detection is so important, tips on what you should be looking out for, some tips on how to stay as healthy as possible, and what early detection could mean for you. 

We know that breast cancer is the second most diagnosed cancer in women and one of the most fatal. At the end of the day, catching it as soon as possible is key. As of now, there isn't a cure for breast cancer, making early detection more important every day. The purpose of early detection is to find and identify any breast abnormalities as soon as possible. If breast cancer or it's beginning stages are found and caught sooner, it can be treated more efficiently. There are more treatment options available to you and there is a higher rate of survival if caught sooner. 

We've talked about the reality that breast cancer can appear in women under the age of 40 in some of our most recent blogs. It does happen more often than the general public cares to admit. Mammograms are not efficient enough for women under the age of 40, as the breast tissue is still to firm for the mammogram to penetrate through and provide a clear reading of what's happening inside the breast itself. This is when self-breast examinations come into play and become incredibly important. By the time you've reached early adulthood, you should be doing a monthly breast exam, regardless of your family's history of breast cancer. It never hurts to be safe. Self-breast examinations are the best tool for discovering early stages and signs of breast cancer, and any findings should always be reported to your doctor. 

  • Maintaining a Watchful Eye 
With it being such a deadly disease, it's scary to know that many symptoms of breast cancer can very easily go unnoticed. Thankfully, if you're proactive and know what signs you should be looking for in self-breast exams and in the health of your body overall, you can help improve your chance of early detection. 
  1. You should be giving yourself monthly breast exams. 
  2. If there is any change or abnormality in your breast that you've discovered, they need to be reported to your doctor right away! 
  3. If you find a lump in your breast, please alert your doctor. But remember, not all lumps mean that you have cancer. Also, remember to look and feel for lumps and tenderness on the side of your breast and in your armpit. 
  4. If the texture of your skin or the size of your pours changes on your breast.
  5. If your nipples become extremely tender. 
  6. If the size and shape of your breast changes out of the blue with no rhyme or reason, either growing larger or shrinking.
  7. If your breast has a milky discharge and you're not breastfeeding. 
  8. If your nipples have turned inward or have become inverted and there is a dimpling anywhere on the breast. 
  9. There are more signs you need to be looking for and aware of, but these are some of the most important warning signs you need to be looking for now. 

  • Starting Now
Fighting against your body, genetics, and forces that are out of our control is a daily battle women with breast cancer or who are high risk are very aware of. There are some things you can be doing now to lower your chances of developing breast cancer and to give your body a fighting chance that it doesn't appear. Take these to heart, along with your monthly breast exams, and be good to your body. 
  1. Maintain a healthy weight consistently and in a healthy manner. 
  2. Don't begin to smoke or stop if you already are. 
  3. Limit your alcohol intake. 
  4. Exercise often, and maintain a healthy exercise plan throughout your life. 
  5. Eat a nutritious and balanced diet to maintain your active lifestyle and healthy weight. 
  6. Breastfeed your children.
  7. Hormone therapy treatments.
  8. Genetic counseling and testing for those at high-risk.

  • The Truth In Now
Early detection means something different to everyone. For some, it becomes a healthy habit that they do once a month. For others, it's because they know the risk of getting breast cancer is already incredibly high. If your sister, mother, or daughter has had breast cancer, your risk of also getting it doubles. If two of these close relatives have been diagnosed, then your risk is five times higher than normal. When these numbers begin to add up, it becomes more than just a monthly breast exam. You will need to pay closer attention to your breast's health both at home and with more frequent visits to your doctor. 
  • If you come from a high-risk family, sometimes it can be linked to having an abnormal gene like the BRCA1 or BRAC2 gene. Getting tested for these genes becomes very crucial when coming from a high-risk family. There is hormonal therapy available to help prevent these abnormal genes from turning into cancer and to lower the risk of developing cancer. There are four different hormone therapy medicines that have been developed that have proven to reduce the risk of cancer if you do test positive for these abnormal genes. But, they do not reduce the risk of hormone receptor negative breast cancer. 
  • Protective surgery could also be in your future if your risk is extremely high. This choice is one that needs serious consideration, as it is a form of irreversible risk reduction. This form of surgery, known as prophylactic surgery, removes one or both healthy breasts or ovaries to reduce the risk of breast cancer. This surgery can reduce a woman from developing breast cancer by over 90%. Women with a history of breast cancer in their families or those who have tested positive for the BRCA1 or BRAC2 gene who have their uterus removed before menopause can reduce their risk by 50%. 
  • If you are at high risk and have decided to move forward with hormone therapy treatments genetic counseling, or prophylactic surgery, this will become a part of your everyday life. You will need to implement healthy life changes to maintain your health and to begin the best steps to keep you healthy and strong during your fight for prevention. 

Breast cancer is a risk for everyone. The path you take will just be a little different depending on who you are, what your body has decided to do, and what your family history is. But know that no one is alone on this path. You might need to deal with these realities a little sooner than later, it might become a part of your medical appoints and gynecologist visits every year, but it will keep you healthier longer. Be kind to your body and follow the necessary steps to preserve your life. Stay strong, Lowcountry! We are in this fight and all the fight the world has currently given us, together. Today is another day that we have to live to the fullest. 
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To Be Seen; A Personal Journey

5/1/2020

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Thanks to our incredible followers and supporters, we have another incredible survivor story that we are very proud to share with you. We hope these words bring you comfort, peace, and hope. 

This hasn't been the spring that any of us could have imagined. But, we are still marching on. We are still here for you as you continue to fight your battle, continue to heal, and continue to carry on every day. A few months ago, we shared a survivor story about Savanna James. Her words continue to echo in our hearts and minds, and we hope they have stayed with you. Just a few weeks ago, another survivor story came into our world, and we are very proud to share it with you here today. We want to introduce Michele Wheeler, her story, and her incredible nurse, Jim. Michele has shared this story on her own website, and we are very thankful to her for allowing us to share it with you here today.  


                                                                                To Be Seen 

     The birthday party was going to be phenomenal. He stood over me explaining how his wife had to bake three cakes  - three! - because they invited all the kids in both classes. I lay trapped in tubes and wires and blankets and gowns while his words passed through the air above me. Some people might think they were going overboard for a four-year-old. Other people might. Not anyone in this room of course. Radiologists rule in this room. I stared at the ceiling thinking What in the ---- is happening here? as the masked techs oohed and awed over those cakes and the balloons and the bouncy house. Trapped, I tried to ignore them all as he shoved a needle into my liver to grab the sample that would confirm if I was dying of cancer or not. 

     That was three years ago. The sample came back hot.  Now, I was back in the exact same hospital, the exact same radiology department, for another biopsy. This time, we were looking for mutations that could provide more treatment options. I insisted on a different surgeon, and I got one, but the stench of frosting and the memory of that big fat needle were still very much with me. They told me, back then, that the meds would give me an I-don’t-care feeling, with a little amnesia mixed in. But I remembered. Oh, believe me, I did care. 
     And so I told them, now, how the baggage from the last liver jab was increasing my anxiety beyond the more “standard” biopsy stress. I’m just barely hanging on here folks, I told them. Please help me out by upping those I-don’t-care meds and skipping the talk about your outstanding personal plans, thanks so much. 
     Sounds fair,
they said. That’s exactly what we’ll do. 

     I didn’t used to lay it out that way. I let uncertainty and fear overwhelm me into passive obedience. Because certainly all those nurses and doctors had been through whichever procedure far more times than I have. But after years of cancering, and too many appointments left feeling undervalued, I’ve matured into the realization that I am, in fact, an expert in Me. More so, I’ve come to appreciate how much doctors and techs really do want to get it right and telling them how I want it just makes it easier for everyone.
     Does it actually need to be said that you shouldn’t talk about your kid’s happy party during a terminal illness reveal? And honest feedback, the part of me that gets angry every time I see a birthday cake, would readily join you in hanging up that first surgeon. 
     But the part of me that needs to let go of that anger remembers that not everyone has experienced the sharp side of the needle. And so yes, it does need to be said. 
     It needs to be said because maybe he was trying to distract me by talking about that party. And maybe it would have worked if he just would have said first, I am sorry that this is happening to you. Then I could have said, Tell me everything about that bouncy house. 
​

     My med guy came, Jim, came in then to introduce himself. He managed to strike up small talk that seemed well placed, asking me about my kids a bit, surface questions, with just enough about his own kids to keep the conversation going. He was gentle. He let me know that I’d get my I-don’t-care meds after just a little more prep. 
     He wheeled me into the biopsy room, and that prep got very active. There were at least another five masked techs hooking me up to wires and hoses. The radiologist came up then and reached across me to adjust the monitor he would use to look for a sampleable tumor with ultrasound. When he started pushing down with the wand on my stomach, just below my ribs, I told him, “Can you move that screen so I can’t see it, please?” As he did, I closed my eyes and said, “And no comments about the size of the tumors either, please.”
     I could still feel constant motion around me, and then a quiet voice from just behind me, Jim, “Michele, I’m going to give you some of that anti-nausea medication now, okay?” I nodded, thinking but what about the I-don’t-care meds?  Not wanting to sound like a junkie, I tried to be patient. 
     But I could feel it coming. Like the vibration on train tracks before any sound of the engine, before any hint of smoke coming from its stacks. I kept my eyes closed and wondered which would arrive first: the panic attack or the I-don’t-care meds. 
     Panic did. And I fought with it to speak, managing only, “I could. Now. The I don’t. Don’t care. Meds. I need them cuz I think I might run. I’m gonna…” I raised my hand just a bit to the radiologist, “So with the wand. It. The. Could you. Wait. Please?” He took it off my stomach and the room got very still. I kept my eyes closed to find the words, and finally managed, in a whisper, “I’m going to have a panic attack. I’m just about to and I need that anxiety medicine right now.”  
     With that, the radiologist patted my arm gently once, and let me know he’d wait outside until the meds kicked in. The rest of the staff left as well. But Jim stayed. He interrupted the quiet only to give me brief updates. I’m delivering those meds now, Michele. And then a few moments later, They should start working really soon.
     It was more like I started leaking than crying. The tears just slipped easily from the corners of my eyes. With all the tubes and wires and blankets and gown twisted around me, I was helpless to do anything but let them fall. But I said nothing, because I thought asking for tear wiping was taking it a bit too far. 
     I didn’t have to ask. Before those tears reached my ears, I felt a tissue on either side of my face as Jim gently wiped them up. And yes, the tenderness of that did make me squeak out a few more tears. But it was far fewer than it would have been, had those tears fallen unnoticed and been left to soak my hair. 
     Thank you, I said.
     You’re welcome, said Jim. And for the next few minutes, I lied there, leaking tears, and Jim sat behind me, wiping them up.
     The meds finally kicked in, enough so that we could carry on with the procedure, but they didn’t erase the reality that put me there. I leaked, intermittently through the whole thing. One click. Two clicks. Tears slipped from my eyes as little bits of cancer and liver were pulled from under my ribs. I kept dripping while I counted three… four... five. I think it was Jim that kept wiping the sides of my face as I silently cried. I don’t know. I kept my eyes closed the whole time. But I do know that not one tear passed an ear, and that was an enormous comfort.

​
Because still wrapped in blankets and trapped in illness, I felt seen. 

Thank you so much, Michele, for sharing your incredibly brave story. Our hearts were with you through every written word and will continue to be as you continue your journey. Thank you for lifting up the people in your journey, like Jim, who has helped you through it all. Thank you for sharing with us the need and the right you have to ask for what you need in every step of your treatment and beyond. You are an incredible warrior. Thank you for sharing this with us. 

To learn more about Michele, read more incredible stories like this one, and to follow her journey check out her website by following the link below! 
https://www.acrackinthewall.com/

We would be honored to hear and share YOUR story too. We want to share your experiences to help to continue inspiring others just like Savanna and Michele have. If you would like to share, email us your story and a photo of yourself to survivors@thebreastplace.com and you may be featured on our social media or in an upcoming blog post.

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